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Edited by Fallen003: 6/5/2016 11:25:29 PM
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A thank you to Bungie, from a guy with a brain tumor (Update 6/26/15) Good and bad news

June 5, 2016 update Holy crap guys, it's been a year since my last update? Man time has flown. So I'm popping in by request to give an update. It's been an interesting year to say the least. Good news first: My latest visit with the specialists was three weeks ago give or take. The tumor is stable and shrinking, down to ~5mm or so in size. Doc thinks 2-2.5 years more of medication and it'll be gone. Since it is stable, they are looking at other issues that are wrong with me. I should also (hopefully) have my disability approved by the end of the month. I am also 100% off insulin now. So my body is slowly healing. Bad news that isn't too horrible: Let's see... The missus and I separated last August. Thankfully it was an amicable thing. I tried to go back to work, but crashed and burned horribly, only being able to work 2-3 days a week isn't a good thing at a full time job. It was worth a shot though. I was diagnosed with AGHD, as my body apparently isn't making growth hormone. Like none. So I started shots for that on Friday night. Doc thinks that in a year or less, the shots should really start fixing a lot of my other issues with memory, focus, etc. It'll be nice to be able to explain stuff without losing my train of thought. I've spent about an hour typing this so far. The nerve damage doesn't look like nerve damage. I have a MRI on Monday to look at my C Spine, as the neuro guys think one of my many back injuries might have crushed some nerve fibers. Still, at least we know the nerves are functioning, just the pain signals aren't getting where they need to go. All in all though, that's not what I'd call "bad" news. I'm finally getting a lot of the answers I've needed for the last few years. It's only taking 3000 mile round trips to Seattle to get them (I'm in interior Alaska) but it's worth it. So the current med tally has gone down, but what is left is more specialized stuff. -Cabergoline 0.5mg twice a week -Testosterone Cypionate 80mg a week IM shot -Novotropin (HGH) 0.2ml shot daily -Metformin XR 500mg daily Thanks again for all the 'get wells' and wishes everyone. Honestly I'd forgotten about this until I got a message on xbox live the other day. Hope to catch you guys around and probably get shot in the face since I suck at PVP :D ------------------------------------------------------------------------------------------------------------------------------------------------------------------ Edit: Moved from #Destiny to #Bungie for a better fit. First off, it isn't cancer thankfully. Downside is that I have a lifetime of medication that I can never go off of. This is where Bungie and the Destiny Beta comes in. Truthfully, I doubt out of all the forum posts and emails that they'd ever read this, but I'm telling my story anyhow. I had my final exam for disability due to my tumor on the 22nd. To say I was a mess before going into the psychological exams would be putting it lightly. I haven't slept more than 4 hours a night since I lost my job back in February from being unable to work. When I got out of my four hour appointment, I had an email. Not just any email, but one containing the beta download codes for Xbox. The moment I got home with my wife, Destiny was downloading, and we spent the entire beta test ignoring my problems for a few days. It was nice to feel normal, even for a few days. Nice to forget all the crap that is going on in my life and let it all fade away into having fun playing xbox with the wife again. Nice to remember what life was like 10 years ago playing Halo when we were dating and life was a lot simpler. It was nice to know that even though I'm going through hell right now, that there was still some kind of hope. I got a letter in the mail this past Saturday saying that (even with the tumor messing up most of my function) that I should be able to work in some capacity to the point my disability was denied. Truthfully, I have no idea if we will be homeless or not when the full version of Destiny comes out, but that isn't the point to all this. My point is simple really. Thank you Bungie for putting something out that even in an incomplete state, it could help me forget the daily migraines, medication injections, and general hell that my life has been for the last eight months. That is something truly impressive to experience. Thank you Bungie for continuing to put out great content, and even if I end up unable to play the full version of Destiny, I wish you the best on the launch. Your staff deserves a round of applause for the great game they have created. In regards to the comments, details for my condition are in a comment further down the page. Thank you all for the well wishing. Normally, I'd go comment by comment and say thank you, but it is looking like I'd have a ton of them to go through. Thanks guys, and with a little luck you'll get to shoot me in the face in Destiny sometime lol.
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  • I'm praying for you man. I hope it's getting better. You're post hit me hard, use reminding me that sometimes something so simple can have a huge impact. #bungie hook this guy up or help him out in someway. If any fan deserves it. It's him.

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    • <3 keep your head up. When this is all said and done I will remember this story just as much I remember the game itself. You stuck a cord in many of our hearts and we all hope you get better.

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      • All I can say <3

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      • This is amazing. Update?

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        • God bless you

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        • Hey merry christmas and happy new year. Hope things continue to get better. And bump, love seeing hope here

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        • Hope ur ok m8 UR gr8[spoiler]ayy lmao( ͡° ͜ʖ ͡°)[/spoiler]

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        • How's it going man? Haven't talked in a long time....

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          • Thanks for sharing this, takes courage to share here, let alone your life path. Wishing you the absolute best. As a quick tip, and this may be a tough one to grasp (or not), I have come to understand the power of thought (belief) upon ourselves, mentally-emotionally-physically-spiritually. Thoughts are indeed powerful. Do your best to be aware of your (conscious/subconscious) beliefs, and change them accordingly. With each belief, ask yourself "is this what I want to experience?" This is all from someone who has spent years looking within to understand my own pain and suffering, and WOW, the beliefs I build up over the years that were working against me. I have experimented with the power of thought over the years and proven to myself the effectiveness of Conscious Creation. There's so much more than the average person knows. That said, every experience is valid, just know that you have more choice available to you than most understand. We all do it every day, but have little awareness of what we create/experience. "Universe, I give miracles intended for me to Fallen003. Please help him as he could really use it right now." In brotherly love and peace, LT

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          • Stay positive man you'll get through this God Bless

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          • Now this is a post that puts everything into perspective. Real life comes first and you my friend are living proof of what life is about. The fact that you can find an escape playing Destiny makes all the haters seem rather pathetic. I can relate regarding the worry about work buddy as I am currently off sick following a pulmonary embolism. Although I have not lost my job the company I work for don't pay sick pay so I have not been paid for 7 weeks now and it has slumped me deeply into a depression. But reading your post and seeing what you have to cope with is very humbling to me. Here's hoping that things improve for you, you deserve a change of luck fella. Get well soon

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            • Stay strong bud. For the record, I blame obama's communist-care.

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              • Dude. I shed a tear. So sad. Hope your not homeless and doing ok. Stay strong bud.

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                • I just read through your post and many of the comments thereafter, you sir are a awesome human being. Stay positive and keep on keepin on! Wish you the best of luck and a good recovery.

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                • This is great.. Everything you have in your life and still seem to be looking on the bright side of things.. I've seen a thousand people whining they aren't getting enough legendary stuff while you were just happy to be able to play the game.. I read a lot of comments didn't see if you were able to get the full game or not. If so what you think?

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                  • I send you my light ...my prays and love and care for your family hope you the best man...hang in there...!!!

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                  • Hey man, what has happened since last update?

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                    • I have a cousin who gets a new cancer every week so I kinda guess why its like at least for your wife. I hope one of these days you can stop with the meds.

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                    • Thank you for sharing your story. <3

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                    • Edited by DrunkSnowman12: 8/29/2014 12:58:31 PM
                      Amazing Story Bro. I hope everything Goes well for you. Best of Luck!:) -DrunkSnowman

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                    • You'll get through this! From your message alone I can tell you have faith and optimism for your future. Stay strong fellow Guardian. We need you fighting along side us to push back the darkness! God Bless!

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                    • Man, thanks for sharing and for the way in which you shared it. Such an awesome attitude. Many can live their entire lives with eyes closed, but it sounds like yours are wide open. You count your blessings and even in this hour express appreciation instead of self-pity, (which I would never deny you either). But just as others are uplifting to you, this post is uplifting to the rest of us and reminds us of the diurnal joys of life. Thank you. On a personal note, I have also found that great games are amazing at taking me out of my own anxieties or troubles and immersing me into a fantastic world. Looking forward to September 9th with you!

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                      • Well. You're probably one of the most optimistic people I've ever seen on this site. I wish you good luck and for a hasty cure to your blight so you can enjoy your life.

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                      • Hey Fallen, how are you dude and do you have any new Infos? Btw. the #hypetrain is getting real ^_^

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                        • God dammit... I'm crying. I wish the very best for you and your wife. How could such an awful thing happen to such an awesome person. Stay true, Stay strong, Don't give up your my hero. Punch that tumor in the face for me ;)

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                          • Update: I have referred Fallen (he did not give me permission to divulge his name) to a colleague in Alaska who is a member of the same advocacy group that my law firm belongs to, he will be in good hands. Once we confirm that his case has been accepted, I will be sending a donation to help with the development of his case. Keep the prayers, thoughts, an feel-goods coming Guardians, I'm sure Fallen appreciates the surge of support from the gaming community.

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