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Edited by Fallen003: 6/5/2016 11:25:29 PM
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A thank you to Bungie, from a guy with a brain tumor (Update 6/26/15) Good and bad news

June 5, 2016 update Holy crap guys, it's been a year since my last update? Man time has flown. So I'm popping in by request to give an update. It's been an interesting year to say the least. Good news first: My latest visit with the specialists was three weeks ago give or take. The tumor is stable and shrinking, down to ~5mm or so in size. Doc thinks 2-2.5 years more of medication and it'll be gone. Since it is stable, they are looking at other issues that are wrong with me. I should also (hopefully) have my disability approved by the end of the month. I am also 100% off insulin now. So my body is slowly healing. Bad news that isn't too horrible: Let's see... The missus and I separated last August. Thankfully it was an amicable thing. I tried to go back to work, but crashed and burned horribly, only being able to work 2-3 days a week isn't a good thing at a full time job. It was worth a shot though. I was diagnosed with AGHD, as my body apparently isn't making growth hormone. Like none. So I started shots for that on Friday night. Doc thinks that in a year or less, the shots should really start fixing a lot of my other issues with memory, focus, etc. It'll be nice to be able to explain stuff without losing my train of thought. I've spent about an hour typing this so far. The nerve damage doesn't look like nerve damage. I have a MRI on Monday to look at my C Spine, as the neuro guys think one of my many back injuries might have crushed some nerve fibers. Still, at least we know the nerves are functioning, just the pain signals aren't getting where they need to go. All in all though, that's not what I'd call "bad" news. I'm finally getting a lot of the answers I've needed for the last few years. It's only taking 3000 mile round trips to Seattle to get them (I'm in interior Alaska) but it's worth it. So the current med tally has gone down, but what is left is more specialized stuff. -Cabergoline 0.5mg twice a week -Testosterone Cypionate 80mg a week IM shot -Novotropin (HGH) 0.2ml shot daily -Metformin XR 500mg daily Thanks again for all the 'get wells' and wishes everyone. Honestly I'd forgotten about this until I got a message on xbox live the other day. Hope to catch you guys around and probably get shot in the face since I suck at PVP :D ------------------------------------------------------------------------------------------------------------------------------------------------------------------ Edit: Moved from #Destiny to #Bungie for a better fit. First off, it isn't cancer thankfully. Downside is that I have a lifetime of medication that I can never go off of. This is where Bungie and the Destiny Beta comes in. Truthfully, I doubt out of all the forum posts and emails that they'd ever read this, but I'm telling my story anyhow. I had my final exam for disability due to my tumor on the 22nd. To say I was a mess before going into the psychological exams would be putting it lightly. I haven't slept more than 4 hours a night since I lost my job back in February from being unable to work. When I got out of my four hour appointment, I had an email. Not just any email, but one containing the beta download codes for Xbox. The moment I got home with my wife, Destiny was downloading, and we spent the entire beta test ignoring my problems for a few days. It was nice to feel normal, even for a few days. Nice to forget all the crap that is going on in my life and let it all fade away into having fun playing xbox with the wife again. Nice to remember what life was like 10 years ago playing Halo when we were dating and life was a lot simpler. It was nice to know that even though I'm going through hell right now, that there was still some kind of hope. I got a letter in the mail this past Saturday saying that (even with the tumor messing up most of my function) that I should be able to work in some capacity to the point my disability was denied. Truthfully, I have no idea if we will be homeless or not when the full version of Destiny comes out, but that isn't the point to all this. My point is simple really. Thank you Bungie for putting something out that even in an incomplete state, it could help me forget the daily migraines, medication injections, and general hell that my life has been for the last eight months. That is something truly impressive to experience. Thank you Bungie for continuing to put out great content, and even if I end up unable to play the full version of Destiny, I wish you the best on the launch. Your staff deserves a round of applause for the great game they have created. In regards to the comments, details for my condition are in a comment further down the page. Thank you all for the well wishing. Normally, I'd go comment by comment and say thank you, but it is looking like I'd have a ton of them to go through. Thanks guys, and with a little luck you'll get to shoot me in the face in Destiny sometime lol.
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  • I am with you.

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  • I hope all goes well for you and to see you in Destiny soon Guardian!

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  • Bump

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  • A bit late to the post but I still want to say to be strong, and like the others say, I hope everything ends well.

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  • Hang in there bro. Like others, I truly hope all ends up well. Love that so many people here are offering to help, especially Law of Games. That's awesome. I fix broken electronic/hydraulic equipment in my career, so not much use to you. Don't have much $$$ to send either as I'm a father of five. However, the fam and I will pray for your recovery, or at least, a path to increased and stable quality of life.

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  • I'm not one easily moved to tears, but you got me best wishes friend

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  • G8 B8 M8

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  • See... you would never find this on a COD forum. [i]Bungie is magical.[/i]

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    1 Reply
    • Edited by Inactive: 8/9/2014 4:00:31 AM
      [quote] Edit: So I've been messaged several times about donations and whatnot. For the record, getting money or help wasn't even the point of this post. Honestly, the community here at Bungie has surprised the hell out of me twice in one day. I never expected this much of a response, let alone all the offers of help or assistance I am getting. So thank you everyone. If you do feel the need, I'll link my gofundme below. Personally, just the good thoughts from the forums alone are helping like crazy. I don't want this to turn into "Fallen003's fundraiser page" but thank you either way. [url]http://www.gofundme.com/bs265c[/url][/quote] [url=http://www.dodge-dart.org/forum/attachments/dodge-dart-general-discussion/37279d1405017839-does-anyone-know-where-i-can-get-set-black-rotors-my-2014-dart-rallye-shut_up_and_take_my_money.jpg]Shut up and take my money[/url]

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      • TL;DR

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        1 Reply
        • Good luck buddy. And may the light guide you through your troubles

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        • Awesome post man, I really hope everything works out, but I'm happy the beta helped alleviate the pain. My friend has a brain tumor that induces epilepsy, and it is tough stuff, all the well wishes buddy, maybe in a few dozen years tech will catch up to what is necassary to remove the tumor.

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        • Wish you the best of luck everyone here is there for you

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          • sending ammunition your way

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          • Good luck sir hopefully it some how heals best wishes

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          • Good luck bro, hope it all works out for you

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          • Wow, proud to see so many people running to revive a downed Guardian. Faith in humanity restored. To Fallen003 keep on keeping on and best of wishes!!!

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          • Good to see you are getting help bud, good luck to you and good luck for the future, It's a twisty windy road we all walk some have their potholes but we all make our way to the end, all we can hope is it's been a nice walk

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          • The bravest of gaurdians stand the tallest above all, may you be one of them. Best of luck to you gaurdian.

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          • I truly hope that you can find a way to cure yourself of this affliction friend. I wish I could meet your in person but I feel I wouldn't have much to say. So I'll say this. You have faced your ordeal with a bravery few could muster. If I were in such a position to help other than these words of encouragement besides you the whole way. Hopefully I can see you start side guardian.

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          • Good luck Fallen. I am a cancer survivor and really your mentality and positivity works much harder for you than the DR prescribed Meds. Good luck to you

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          • ..

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          • Get well.

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          • I am sorry for how things have been so far, just keep fighting and don't ever give up. I'll pray for you every night and try to donate, good luck and take care ;)

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          • Bravo on your courage and will to survive. Looks like you got the community behind you. You should seriously change your gamer tag from Fallen003 to SurvivorMan !!! Cheers Bro.

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          • Appeal.. refine your case and appeal. Then Refine your case and appeal. Then Refine and appeal. Noone.. Noone has ever gotten disability on the first appeal. The one you paid for through your work. never. Take notes give dates, give specifics. When they come back with the next denial. Prove that to be wrong. The next denial. Prove that to be wrong until they cant deny the claim. Those insurances companies are the most profitable in the class because they are under less demanding restrictions by the government because they are NOT required by law. Car and home insurance compaines ARE required by law so they are forced to pay after decades of refinements to their laws.

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