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Edited by Fallen003: 6/5/2016 11:25:29 PM
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A thank you to Bungie, from a guy with a brain tumor (Update 6/26/15) Good and bad news

June 5, 2016 update Holy crap guys, it's been a year since my last update? Man time has flown. So I'm popping in by request to give an update. It's been an interesting year to say the least. Good news first: My latest visit with the specialists was three weeks ago give or take. The tumor is stable and shrinking, down to ~5mm or so in size. Doc thinks 2-2.5 years more of medication and it'll be gone. Since it is stable, they are looking at other issues that are wrong with me. I should also (hopefully) have my disability approved by the end of the month. I am also 100% off insulin now. So my body is slowly healing. Bad news that isn't too horrible: Let's see... The missus and I separated last August. Thankfully it was an amicable thing. I tried to go back to work, but crashed and burned horribly, only being able to work 2-3 days a week isn't a good thing at a full time job. It was worth a shot though. I was diagnosed with AGHD, as my body apparently isn't making growth hormone. Like none. So I started shots for that on Friday night. Doc thinks that in a year or less, the shots should really start fixing a lot of my other issues with memory, focus, etc. It'll be nice to be able to explain stuff without losing my train of thought. I've spent about an hour typing this so far. The nerve damage doesn't look like nerve damage. I have a MRI on Monday to look at my C Spine, as the neuro guys think one of my many back injuries might have crushed some nerve fibers. Still, at least we know the nerves are functioning, just the pain signals aren't getting where they need to go. All in all though, that's not what I'd call "bad" news. I'm finally getting a lot of the answers I've needed for the last few years. It's only taking 3000 mile round trips to Seattle to get them (I'm in interior Alaska) but it's worth it. So the current med tally has gone down, but what is left is more specialized stuff. -Cabergoline 0.5mg twice a week -Testosterone Cypionate 80mg a week IM shot -Novotropin (HGH) 0.2ml shot daily -Metformin XR 500mg daily Thanks again for all the 'get wells' and wishes everyone. Honestly I'd forgotten about this until I got a message on xbox live the other day. Hope to catch you guys around and probably get shot in the face since I suck at PVP :D ------------------------------------------------------------------------------------------------------------------------------------------------------------------ Edit: Moved from #Destiny to #Bungie for a better fit. First off, it isn't cancer thankfully. Downside is that I have a lifetime of medication that I can never go off of. This is where Bungie and the Destiny Beta comes in. Truthfully, I doubt out of all the forum posts and emails that they'd ever read this, but I'm telling my story anyhow. I had my final exam for disability due to my tumor on the 22nd. To say I was a mess before going into the psychological exams would be putting it lightly. I haven't slept more than 4 hours a night since I lost my job back in February from being unable to work. When I got out of my four hour appointment, I had an email. Not just any email, but one containing the beta download codes for Xbox. The moment I got home with my wife, Destiny was downloading, and we spent the entire beta test ignoring my problems for a few days. It was nice to feel normal, even for a few days. Nice to forget all the crap that is going on in my life and let it all fade away into having fun playing xbox with the wife again. Nice to remember what life was like 10 years ago playing Halo when we were dating and life was a lot simpler. It was nice to know that even though I'm going through hell right now, that there was still some kind of hope. I got a letter in the mail this past Saturday saying that (even with the tumor messing up most of my function) that I should be able to work in some capacity to the point my disability was denied. Truthfully, I have no idea if we will be homeless or not when the full version of Destiny comes out, but that isn't the point to all this. My point is simple really. Thank you Bungie for putting something out that even in an incomplete state, it could help me forget the daily migraines, medication injections, and general hell that my life has been for the last eight months. That is something truly impressive to experience. Thank you Bungie for continuing to put out great content, and even if I end up unable to play the full version of Destiny, I wish you the best on the launch. Your staff deserves a round of applause for the great game they have created. In regards to the comments, details for my condition are in a comment further down the page. Thank you all for the well wishing. Normally, I'd go comment by comment and say thank you, but it is looking like I'd have a ton of them to go through. Thanks guys, and with a little luck you'll get to shoot me in the face in Destiny sometime lol.
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  • I was physically in the hands of the Veterans Assistance administration after bladder cancer surgery, placed in a local nursing home by the V.A. for recovery for six months, when I received the notice that my disability was not approved. That is a condition that will never go away and is so debilitating that any kind of work is impossible. The reason given was that insufficient medical evidence of disability was provided. It took the big foot of the V.A. to step on both the Social Security Administration and the state of Washington to get anything accomplished. It appears to be normal procedure for disability to be denied after application for all except those who feign disability while living in homeless shelters. Those are the only ones I have witnessed being accepted into the program without any hassle or delay. "Law of Games" is offering a great blessing to you. It is actually exactly what must be done in order to win your claim, and that is part of your Destiny.

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  • Hope u get better man. Respect.

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  • Edited by wolfpak: 8/8/2014 5:57:15 PM
    start a foundation or somthing so that we can donate some dough.

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    • My mom suffered from a brain tumor and went through brain surgery 5 years ago and is still recovering and I understand how everyday is a challenge. I've seen how the things she enjoys can take her mind off her situation and I hope all the best for you. I hope to see you in the tower.

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    • Continue filing for disability. They never give on the first couple of tries. That, or get that awesome law of games dude to help you. I wish u the best of luck pal. *hugs*

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    • Man that sucks dude. I hope you get well soon. I love seeing everyone here trying to help you, it brings some faith back into humanity. The gaming community is just amazing. Will you be able to afford destiny? If not, I can try to help you pay for it if I get my parents to believe me. [spoiler]hope you kick that tumors ass![/spoiler]

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      • My brother had a malignant brain tumor about five years ago when he was 11. Like yours thankfully it wasn't cancerous but I know that it's a whole world of shit. Stay strong my man and hopefully that lawyer who's helping you out on here can get you in contact with someone who can help you in your situation.

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      • Wow, I am truly moved by your story! I know the feeling of escaping into another world (game or movie) to forget about your day to day issues. I really hope that Bungie gives you the game for free, especially hearing how much of an impact it is making on their fan community and those that are suffering from illness or other day to day issues. My prayers go out to you and your family. Stay strong my man!

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      • Edited by gafgaryon: 8/8/2014 6:23:48 PM
        Best of luck fellow guardian. Hope to see you on the battlefield in september.

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      • Also, this just makes me so thankful that I live in the UK where medication and operations are free. I know it's seriously drastic but have you considered maybe once you've got a job and a bit of money applying for citizenship in the UK or Germany?

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      • Best of luck to you and I hope things work out or at least return to some form of normality for you. Thanks for sharing and reminding us what gaming/entertainment is for. To forget our problems and issues in life and to be entertained, not to bring our own personal hang ups, be it ethnicity, religious, or politics. A place to just be decent human beings to each other, & have fun/be entertained. Sorry for the derail, but again, best of luck.

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      • Good luck fellow gamer, hope things start looking up for you guys very soon. You gotta love how the system works with disabilities. Someone like you that needs it doesn't get it, but then we have how many taking advantage of the system that don't need it one bit. Drives me nuts. Anyways, keep looking up bud!!

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      • Good luck bro #luck

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      • If youre playing on an Xbox 1 hit me up when you can man. Id be happy to do some strikes!

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      • HuzaUh! You are the main man! My best wishes with you guys always.

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      • Aside from being a wizard(lol) I just wanted to say thanks for sharing your story and I hope you live comfortably and enjoy the game. Get well and stay strong.

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      • I hope life gets better for you. What a trooper.

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      • Everyone I know that has applied for disability got turned down 1st time. Get lawyer and don't give up. My dad is paralyzed and he got denied 1st time.

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        • Godspeed. I shall pray for you and your family.

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        • Stay strong Guardian your in our hearts

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        • Good stuff! Did you take that guys offer?!

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          • Update: I have referred Fallen (he did not give me permission to divulge his name) to a colleague in Alaska who is a member of the same advocacy group that my law firm belongs to, he will be in good hands. Once we confirm that his case has been accepted, I will be sending a donation to help with the development of his case. Keep the prayers, thoughts, an feel-goods coming Guardians, I'm sure Fallen appreciates the surge of support from the gaming community.

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            • Stay strong fellow Guardian. Be brave.

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            • I don't post much, but I must say to the OP, good luck. Washington is a great place to live by the way... Our sun behaves a bit better than AK lol.

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              • Edited by NeoMorph WTH: 8/8/2014 9:52:57 PM
                I've been on disability for a number of years... My last board that consisted of 5 doctors examining me and they put me on permanent disability due to my illness is one that will get worse as time goes on. They had oodles of data and examined me closely. My problem is that I have Joint Hypermobility Syndrome... I dislocate and sublux (partial dislocate) joints pretty much every day. That causes nerve damage and ooodles of pain. The doctors even managed to dislocate my shoulder in the exam lol. Hell, I even dislocated my thumb playing COD4 back in the day. So years go on and I get progressively worse... then the UK Conservatives get into government and they insisted that everyone who is on disability should be tested again. Now I didn't have any problems and I ended up with MORE money than before... but the problem is that it left me a mess after hearing that people who are so disabled that they can hardly function were being designated as "fit for work". Hell they even sent this one guy the notice that he was fit for work AND HE HAD DIED FROM HIS ILLNESS. Granted that some people have conned the system and have been ripping off the government. But the ones who truly suffer are the ones who need the support the most, like Fallen003. They don't take into account the stress that they put on disabled who have enough worry as it is. The government don't see the sleepless nights due to stress from the disability. I've know down's syndrome sufferers who cannot do anything for themselves who have been told they are fit for work. I've seen one guy who was on a heart transplant waiting list put on the Fit For Work. Know what? There is one group of people that ISN'T fit for work and that is the people who are doing the assessments. Sorry, things like this really pee me off. Fallen003, my thoughts are with you. DON'T GIVE UP...

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              • Our thoughts and well wishes go with you always, fellow Guardian. See you starside. Be well.

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