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Edited by Fallen003: 6/5/2016 11:25:29 PM
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Fallen003

A thank you to Bungie, from a guy with a brain tumor (Update 6/26/15) Good and bad news

June 5, 2016 update Holy crap guys, it's been a year since my last update? Man time has flown. So I'm popping in by request to give an update. It's been an interesting year to say the least. Good news first: My latest visit with the specialists was three weeks ago give or take. The tumor is stable and shrinking, down to ~5mm or so in size. Doc thinks 2-2.5 years more of medication and it'll be gone. Since it is stable, they are looking at other issues that are wrong with me. I should also (hopefully) have my disability approved by the end of the month. I am also 100% off insulin now. So my body is slowly healing. Bad news that isn't too horrible: Let's see... The missus and I separated last August. Thankfully it was an amicable thing. I tried to go back to work, but crashed and burned horribly, only being able to work 2-3 days a week isn't a good thing at a full time job. It was worth a shot though. I was diagnosed with AGHD, as my body apparently isn't making growth hormone. Like none. So I started shots for that on Friday night. Doc thinks that in a year or less, the shots should really start fixing a lot of my other issues with memory, focus, etc. It'll be nice to be able to explain stuff without losing my train of thought. I've spent about an hour typing this so far. The nerve damage doesn't look like nerve damage. I have a MRI on Monday to look at my C Spine, as the neuro guys think one of my many back injuries might have crushed some nerve fibers. Still, at least we know the nerves are functioning, just the pain signals aren't getting where they need to go. All in all though, that's not what I'd call "bad" news. I'm finally getting a lot of the answers I've needed for the last few years. It's only taking 3000 mile round trips to Seattle to get them (I'm in interior Alaska) but it's worth it. So the current med tally has gone down, but what is left is more specialized stuff. -Cabergoline 0.5mg twice a week -Testosterone Cypionate 80mg a week IM shot -Novotropin (HGH) 0.2ml shot daily -Metformin XR 500mg daily Thanks again for all the 'get wells' and wishes everyone. Honestly I'd forgotten about this until I got a message on xbox live the other day. Hope to catch you guys around and probably get shot in the face since I suck at PVP :D ------------------------------------------------------------------------------------------------------------------------------------------------------------------ Edit: Moved from #Destiny to #Bungie for a better fit. First off, it isn't cancer thankfully. Downside is that I have a lifetime of medication that I can never go off of. This is where Bungie and the Destiny Beta comes in. Truthfully, I doubt out of all the forum posts and emails that they'd ever read this, but I'm telling my story anyhow. I had my final exam for disability due to my tumor on the 22nd. To say I was a mess before going into the psychological exams would be putting it lightly. I haven't slept more than 4 hours a night since I lost my job back in February from being unable to work. When I got out of my four hour appointment, I had an email. Not just any email, but one containing the beta download codes for Xbox. The moment I got home with my wife, Destiny was downloading, and we spent the entire beta test ignoring my problems for a few days. It was nice to feel normal, even for a few days. Nice to forget all the crap that is going on in my life and let it all fade away into having fun playing xbox with the wife again. Nice to remember what life was like 10 years ago playing Halo when we were dating and life was a lot simpler. It was nice to know that even though I'm going through hell right now, that there was still some kind of hope. I got a letter in the mail this past Saturday saying that (even with the tumor messing up most of my function) that I should be able to work in some capacity to the point my disability was denied. Truthfully, I have no idea if we will be homeless or not when the full version of Destiny comes out, but that isn't the point to all this. My point is simple really. Thank you Bungie for putting something out that even in an incomplete state, it could help me forget the daily migraines, medication injections, and general hell that my life has been for the last eight months. That is something truly impressive to experience. Thank you Bungie for continuing to put out great content, and even if I end up unable to play the full version of Destiny, I wish you the best on the launch. Your staff deserves a round of applause for the great game they have created. In regards to the comments, details for my condition are in a comment further down the page. Thank you all for the well wishing. Normally, I'd go comment by comment and say thank you, but it is looking like I'd have a ton of them to go through. Thanks guys, and with a little luck you'll get to shoot me in the face in Destiny sometime lol.
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  • Thanks to the guys who messaged and asked for an update. I filled out a new section on the OP.
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  • Bump
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    • Bump
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    • Bump :) hope you get well asap and I'm pretty sure you can sue them, they royally messed up.q
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    • I hope you find out what's wrong and take it down! I think you could win in a political battle with those doctors who almost killed you by giving you too many drugs
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    • Bumb also please update soon
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      • Thanks guys :) My next visit with the specialist is at the end of September and he's pretty much going to redo all the tests the local docs screwed up to make sure he didn't miss anything. Hopefully he'll figure out WTF is going on at the same time lol. Upside is that I'm feeling well enough to start job hunting, so I'll be able to pick up TTK and Fallout with a little luck.
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      • Glad it's gonna be ok for you lol
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      • Bump
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      • Good for you but who comes up with these names disease's I'd get second opinion on it though.
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      • Glad to hear your ok, Guardian. God bless.
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      • Edited by Agent Strelnikov: 7/12/2015 11:17:29 PM
        Hope things work out for you in the long run. Make sure to take it easy, yah?
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      • 2
        Mr  Sir
        Mr Sir

        OG Ballerhorn: 2014-2015 - old

        Hope everything goes well for you :)
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      • Good luck
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        • Hope your feeling good and I wish you luck!
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          • Bump also update when can please
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            • First time to read this. Bump my friend.
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              • Bump, all the best man
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                • Bump
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                • See my brain in the bottom of the OP. I just picked a shot that looks cool, no idea if there is anything shown.
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                • I believe this stories because I have a deases to and stay home playing destiny it feels good i forgot my pain when i play it
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                • Goodluck. Stay strong. I have a brain tumor too. Nf2
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                • Good luck dude
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                  • Bump
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                  • Hey fallen it's great you will be ok if by some reason I meet you then you might just become rich.
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                    • Hey Fallen! Any update on the treatment? Just wanted to let you know that people are thinking about you. Btw if you ever need any help with anything in Destiny, just let me know! Nexxus052 and Musket Squad are on call!
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