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Fallen003

Fallen003

Edited: 3/17/2015 8:49:41 PM
3/17/15 Update: I am scheduled to see specialists in Seattle on 4/22. It'll largely be all the lab work and tests that can't be done up here in Alaska. Upside is that this clinic is considered the best in the country for my condition, so if anyone can figure out a way to fix me, it's these guys. 2/18/15 Update: They doubled the tumor meds again, with this Saturday being the first dose. I'm at the max dosage now. The last increase in January brought the markers in my blood down from ~20 to 16 so we're at diminishing returns now. Odds are this means that I'll be getting surgery once I get down to Seattle. The paperwork has been submitted, so there is that at least. Kind of funny, but the meds make my head feel like a balloon. I don't really care for it, but hey if they are working I'll deal with it. 1/8/15 Update: I've got to get travel authorized by our insurance, but it looks like I'll probably be in Seattle for a good chunk of March or April at the Swedish Medical Center OR Houston at the Methodist tumor clinic. They have some of the best doctors to deal with the physical and chemical side of all this. The meds I'm on are working fairly well, but I imagine I'll get another MRI series and labs done, etc. Better to have them double check than getting back to Alaska and find out my doc up here sucks more than I thought. Once I get an itinerary set up, I'm going to get a hold of Bungie and see if it would be possible to take a tour of their building. I think it would be awesome if I can. Plus, I'm going to have way too much free time while I'm there. New years Eve 2014 Update: I'd completely forgotten about this thread, so thank you to the guys messaging and asking how I'm doing. The last couple months have been interesting but I'm getting better. There was a lot of trial and error finding out medication doses and whatnot, BUT they think the dosage we've worked out should be enough to kick the tumor's butt. At first I was on .25mg of cabergoline twice a week, now I'm up to .75mg BUT the blood markers are down to under 1/3 of what they were. Should have a new blood test in 2 weeks to find out for sure. The docs finally admitted they were out of their depth though, and recommended that I see a specialist. Kind of what happens when you live in a small(ish) town where the closest thing to an endo/neuro doc is an internist. Probably next week I'll be calling our insurance (thank god for insurance now lol) company and seeing if they will cover the trip to Seattle to see the specialist. I'll probably be there a week or so considering the'll want blood draws, etc. A lot of my symptoms are gone or nearly there. I can drive again without worrying about getting in a wreck from being dizzy or forgetting what I was doing. Short term memory is still fried but I'm thinking a lot more clearly at least. Honestly, I'm just amazed you guys even remembered about this thread. Thank you guys and if you are ever bored, feel free to shoot me a message on xbone. Same as my name here :) ---------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------- Edit: Moved from #Destiny to #Bungie for a better fit. First off, it isn't cancer thankfully. Downside is that I have a lifetime of medication that I can never go off of. This is where Bungie and the Destiny Beta comes in. Truthfully, I doubt out of all the forum posts and emails that they'd ever read this, but I'm telling my story anyhow. I had my final exam for disability due to my tumor on the 22nd. To say I was a mess before going into the psychological exams would be putting it lightly. I haven't slept more than 4 hours a night since I lost my job back in February from being unable to work. When I got out of my four hour appointment, I had an email. Not just any email, but one containing the beta download codes for Xbox. The moment I got home with my wife, Destiny was downloading, and we spent the entire beta test ignoring my problems for a few days. It was nice to feel normal, even for a few days. Nice to forget all the crap that is going on in my life and let it all fade away into having fun playing xbox with the wife again. Nice to remember what life was like 10 years ago playing Halo when we were dating and life was a lot simpler. It was nice to know that even though I'm going through hell right now, that there was still some kind of hope. I got a letter in the mail this past Saturday saying that (even with the tumor messing up most of my function) that I should be able to work in some capacity to the point my disability was denied. Truthfully, I have no idea if we will be homeless or not when the full version of Destiny comes out, but that isn't the point to all this. My point is simple really. Thank you Bungie for putting something out that even in an incomplete state, it could help me forget the daily migraines, medication injections, and general hell that my life has been for the last eight months. That is something truly impressive to experience. Thank you Bungie for continuing to put out great content, and even if I end up unable to play the full version of Destiny, I wish you the best on the launch. Your staff deserves a round of applause for the great game they have created. In regards to the comments, details for my condition are in a comment further down the page. Thank you all for the well wishing. Normally, I'd go comment by comment and say thank you, but it is looking like I'd have a ton of them to go through. Thanks guys, and with a little luck you'll get to shoot me in the face in Destiny sometime lol. Edit: So I've been messaged several times about donations and whatnot. For the record, getting money or help wasn't even the point of this post. Honestly, the community here at Bungie has surprised the hell out of me twice in one day. I never expected this much of a response, let alone all the offers of help or assistance I am getting. So thank you everyone. Personally, just the good thoughts from the forums alone are helping like crazy. I don't want this to turn into "Fallen003's fundraiser page" but thank you either way. Link will be provided on request. Thank you :) Edit: for those wondering about my condition, I'll be posting a (contact info deleted) copy of my disability denial on the gofundme page when I get home tonight. You don't have to donate, but I never even thought that I might look like a scammer either. Feel free to ask whatever about my condition btw. I don't mind.

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    Fallen003

    Fallen003

    Edited: 8/10/2014 6:46:57 AM Permalink
    So there were a few comments that were wondering if I was trolling or not. Honestly, the thought that someone might be enough of a jackass to try to scam or get attention like this didn't even cross my mind. I just took a photo of my denial paperwork, only copying out doctor names/phone numbers/addresses, that kind of thing. I have nothing to hide on this, and am not begging for donations. If I am asked to remove the GoFundMe link, I will. Fundraising wasn't the point of this thread anyhow. Honestly guys, in the very short time I have been on here, I have gotten more well wishing and get well comments than on forums that I've been a member of for years. It is absolutely stunning to me that the community here is incredible like this. If I were able, I'd say thank you to all of you individually. Since I can't do that, at least let me share some of my photos from living in Alaska with you. The link below goes to my deviantart page, where I have somewhere in the tune of 500 photos hosted. Some good, some shitty, but I still try to work a camera a day a week if I can. I hope you enjoy, and thank you again guys. [url]http://aknorthpolar.deviantart.com/[/url] Disability denial photo below, as well as self portrait from my nearly week long stay in the hospital this time last year. Hell, I'd rather have to deal with them thinking my pancreas stopped working and just being diabetic than deal with a brain tumor that causes me to need to inject insulin several times a day as well as hormone cocktails. Damn meds made me put on nearly 75# since last fall. I'm officially over 300# now and I can't lose it until they fix me. [url]http://i1313.photobucket.com/albums/t552/AKNorthPolar/Denial_zps4128b6fb.jpg[/url] [url]http://i1313.photobucket.com/albums/t552/AKNorthPolar/E085F151-B92E-4488-AA2B-72B131A238EE-548-000000D890C0E45A_zps9385c757.jpg[/url] [url]http://i1313.photobucket.com/albums/t552/AKNorthPolar/C704D0FD-583D-4F45-AA4A-57B70478F7A5-548-000000D88BA535CF_zps354715be.jpg[/url] [url]http://i1313.photobucket.com/albums/t552/AKNorthPolar/5AD875B4-4F7E-4D13-BB68-8C3F018EECC3-548-000000D8AFEB7C7A_zpsa89d4457.jpg[/url]
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