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Edited by Fallen003: 6/5/2016 11:25:29 PM
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A thank you to Bungie, from a guy with a brain tumor (Update 6/26/15) Good and bad news

June 5, 2016 update Holy crap guys, it's been a year since my last update? Man time has flown. So I'm popping in by request to give an update. It's been an interesting year to say the least. Good news first: My latest visit with the specialists was three weeks ago give or take. The tumor is stable and shrinking, down to ~5mm or so in size. Doc thinks 2-2.5 years more of medication and it'll be gone. Since it is stable, they are looking at other issues that are wrong with me. I should also (hopefully) have my disability approved by the end of the month. I am also 100% off insulin now. So my body is slowly healing. Bad news that isn't too horrible: Let's see... The missus and I separated last August. Thankfully it was an amicable thing. I tried to go back to work, but crashed and burned horribly, only being able to work 2-3 days a week isn't a good thing at a full time job. It was worth a shot though. I was diagnosed with AGHD, as my body apparently isn't making growth hormone. Like none. So I started shots for that on Friday night. Doc thinks that in a year or less, the shots should really start fixing a lot of my other issues with memory, focus, etc. It'll be nice to be able to explain stuff without losing my train of thought. I've spent about an hour typing this so far. The nerve damage doesn't look like nerve damage. I have a MRI on Monday to look at my C Spine, as the neuro guys think one of my many back injuries might have crushed some nerve fibers. Still, at least we know the nerves are functioning, just the pain signals aren't getting where they need to go. All in all though, that's not what I'd call "bad" news. I'm finally getting a lot of the answers I've needed for the last few years. It's only taking 3000 mile round trips to Seattle to get them (I'm in interior Alaska) but it's worth it. So the current med tally has gone down, but what is left is more specialized stuff. -Cabergoline 0.5mg twice a week -Testosterone Cypionate 80mg a week IM shot -Novotropin (HGH) 0.2ml shot daily -Metformin XR 500mg daily Thanks again for all the 'get wells' and wishes everyone. Honestly I'd forgotten about this until I got a message on xbox live the other day. Hope to catch you guys around and probably get shot in the face since I suck at PVP :D ------------------------------------------------------------------------------------------------------------------------------------------------------------------ Edit: Moved from #Destiny to #Bungie for a better fit. First off, it isn't cancer thankfully. Downside is that I have a lifetime of medication that I can never go off of. This is where Bungie and the Destiny Beta comes in. Truthfully, I doubt out of all the forum posts and emails that they'd ever read this, but I'm telling my story anyhow. I had my final exam for disability due to my tumor on the 22nd. To say I was a mess before going into the psychological exams would be putting it lightly. I haven't slept more than 4 hours a night since I lost my job back in February from being unable to work. When I got out of my four hour appointment, I had an email. Not just any email, but one containing the beta download codes for Xbox. The moment I got home with my wife, Destiny was downloading, and we spent the entire beta test ignoring my problems for a few days. It was nice to feel normal, even for a few days. Nice to forget all the crap that is going on in my life and let it all fade away into having fun playing xbox with the wife again. Nice to remember what life was like 10 years ago playing Halo when we were dating and life was a lot simpler. It was nice to know that even though I'm going through hell right now, that there was still some kind of hope. I got a letter in the mail this past Saturday saying that (even with the tumor messing up most of my function) that I should be able to work in some capacity to the point my disability was denied. Truthfully, I have no idea if we will be homeless or not when the full version of Destiny comes out, but that isn't the point to all this. My point is simple really. Thank you Bungie for putting something out that even in an incomplete state, it could help me forget the daily migraines, medication injections, and general hell that my life has been for the last eight months. That is something truly impressive to experience. Thank you Bungie for continuing to put out great content, and even if I end up unable to play the full version of Destiny, I wish you the best on the launch. Your staff deserves a round of applause for the great game they have created. In regards to the comments, details for my condition are in a comment further down the page. Thank you all for the well wishing. Normally, I'd go comment by comment and say thank you, but it is looking like I'd have a ton of them to go through. Thanks guys, and with a little luck you'll get to shoot me in the face in Destiny sometime lol.
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  • THIS is what a true gaming community should be. It makes me feel very happy to know that there are so many loving members of this community :) I am so happy to hear that it is not cancerous, and I KNOW that everything will go well for you! Can't wait for more updates!

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  • Edited by Fichter: 8/10/2014 11:25:47 PM
    Hey, Fallen. I'd like to thank you for sharing a bit of your story. 2 of us Guardians (brothers). Lost our dad a few years back to cancer and during that battle accumulated a brain tumor. His symptoms before the surgery weren't as serious but there were definitely signs of changes in his mood. I only share this as trying to empathize with you. From the two of us, we bow down to a strong community member. Whatever the future holds for you, we will be praying for positive things coming your way! o7 -Fitch & Warglaiive

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    • Good luck to you fellow guardian.

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    • You're an inspiration to me, and many other guardians. See you starside.

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      • Praying for you

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      • I feel sorry for you bro but i think you should maybe try get people to fund you somewhere else.... Not to be rude but it seems like your trying to scam

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        • Edited by CHlPPPY: 8/9/2014 11:53:17 AM
          I hate to be rude or cynical and I’ve already posted in this section saying what a brave person you are but I think people posting on this forum have to keep in mind that there con-artists out there who take advantage of people’s good-nature by fabricating stories that pull at the heart-strings especially when such stories happen to contain information that the person is struggling financially and might be homeless soon and then conveniently a ‘fund-me’ website appears. I’m not trying to undermine your situation if you are genuine, but I just think people should be careful before handing their money over to someone they’ve never met and have no way to validate if what they are saying is true or not. It can be a slippery slope in my experience.

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          • I feel your pain bro. My 30th birthday present was a cancer diagnoses. i was given a 50/50 chance of living for 5 yrs. here i am 14 yrs later still fighting the good fight. stay positive and fight hard youll be fine:) I too use gaming as a release from reality and destiny is a great release. i wish you all the best in life . Aark Aanjel

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            • im glad you can escape to a better place with destiny. i hope u get well. stay positive as that is the 2nd best medicine for u...destiny being number one;) my mom has something similar so i know what youre dealing with. i also know this...you will NOT be without destiny at launch. i dont care what u say;) i will gladly purchase the game for you. message me which console youll play on and ill gladly set this up. no way will u be without destiny. you need that escape and you deserve that much man.

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              • I pray things go well for you friend. Hopefully we will have a chance to shoot at and with one another in the future.

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              • Could be worse. You could have lost an eye

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                • Man this world is full of wonderful people. I hope you recover in no time man. :)

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                • I was complete surprised when I read this post. I even shed a tear or twenty. I am so sorry to hear about illness, however it seems to me you still recognize the good in life. I wish you all the best hun. <3

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                  • you know i came into this post with little faith in humanity but now im leaving it with a bit of tears in my eyes good luck bro add me on xbox if you will . itd be cool to play destiny sometime gamertag is my name on bungie

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                  • Good luck man, I hope you get better and everything works out for you and your family.

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                  • I hope everything goes well for you in the future. I am 19 yrs old, female and suffer from chronic depression so i definitely understand how Destiny was a great escape, it was for me too. I cannot imagine the magnitude of the position you're in. I don't pray, but i will tonight! Best wishes :) keep fighting!

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                    • Are you on xbox one? I'll add you if so. Gamertag is ELH0242.

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                    • I really do not know what to say. This community is awesome. And you sir, are awesome.

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                    • Everyone here is amazing. We have raised $115 more since this time yesterday. SPREAD THIS POST, POST IT EVERYWHERE. Let the whole world know. And. May. The. Light. Be. With. You.

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                    • Just letting you know I've shared your gofundme page on Twitter, along with taken a few measures to hopefully get it spread further. I know how much it sucks to have a disabling condition that doesn't get acknowleged as a disability (long story, not so bad now though), so you have my support. Can't afford much by way of donations, but I'll keep trying to spread awareness.

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                      • good to hear its not cancer. Good luck to you and your family.

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                      • would love to help with some dosh but will help by spreading the word and hope things get back on track soon :)

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                        • Im crying. I just...

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                        • The way the community comes together on this game, makes me realize that there are gamers out there who respect each other and care for the well beings of others.

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                        • I'm a broke ass student but helped as much as I could lol Goodluck to you keep your spirits up! Hope I get the chance to see you in the crucible someday fellow guardian !

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                          • See... you would never find this on a COD forum. [i]Bungie is magical.[/i]

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