JavaScript is required to use Bungie.net

OffTopic

Surf a Flood of random discussion.
Edited by Fallen003: 6/5/2016 11:25:29 PM
309

A thank you to Bungie, from a guy with a brain tumor (Update 6/26/15) Good and bad news

June 5, 2016 update Holy crap guys, it's been a year since my last update? Man time has flown. So I'm popping in by request to give an update. It's been an interesting year to say the least. Good news first: My latest visit with the specialists was three weeks ago give or take. The tumor is stable and shrinking, down to ~5mm or so in size. Doc thinks 2-2.5 years more of medication and it'll be gone. Since it is stable, they are looking at other issues that are wrong with me. I should also (hopefully) have my disability approved by the end of the month. I am also 100% off insulin now. So my body is slowly healing. Bad news that isn't too horrible: Let's see... The missus and I separated last August. Thankfully it was an amicable thing. I tried to go back to work, but crashed and burned horribly, only being able to work 2-3 days a week isn't a good thing at a full time job. It was worth a shot though. I was diagnosed with AGHD, as my body apparently isn't making growth hormone. Like none. So I started shots for that on Friday night. Doc thinks that in a year or less, the shots should really start fixing a lot of my other issues with memory, focus, etc. It'll be nice to be able to explain stuff without losing my train of thought. I've spent about an hour typing this so far. The nerve damage doesn't look like nerve damage. I have a MRI on Monday to look at my C Spine, as the neuro guys think one of my many back injuries might have crushed some nerve fibers. Still, at least we know the nerves are functioning, just the pain signals aren't getting where they need to go. All in all though, that's not what I'd call "bad" news. I'm finally getting a lot of the answers I've needed for the last few years. It's only taking 3000 mile round trips to Seattle to get them (I'm in interior Alaska) but it's worth it. So the current med tally has gone down, but what is left is more specialized stuff. -Cabergoline 0.5mg twice a week -Testosterone Cypionate 80mg a week IM shot -Novotropin (HGH) 0.2ml shot daily -Metformin XR 500mg daily Thanks again for all the 'get wells' and wishes everyone. Honestly I'd forgotten about this until I got a message on xbox live the other day. Hope to catch you guys around and probably get shot in the face since I suck at PVP :D ------------------------------------------------------------------------------------------------------------------------------------------------------------------ Edit: Moved from #Destiny to #Bungie for a better fit. First off, it isn't cancer thankfully. Downside is that I have a lifetime of medication that I can never go off of. This is where Bungie and the Destiny Beta comes in. Truthfully, I doubt out of all the forum posts and emails that they'd ever read this, but I'm telling my story anyhow. I had my final exam for disability due to my tumor on the 22nd. To say I was a mess before going into the psychological exams would be putting it lightly. I haven't slept more than 4 hours a night since I lost my job back in February from being unable to work. When I got out of my four hour appointment, I had an email. Not just any email, but one containing the beta download codes for Xbox. The moment I got home with my wife, Destiny was downloading, and we spent the entire beta test ignoring my problems for a few days. It was nice to feel normal, even for a few days. Nice to forget all the crap that is going on in my life and let it all fade away into having fun playing xbox with the wife again. Nice to remember what life was like 10 years ago playing Halo when we were dating and life was a lot simpler. It was nice to know that even though I'm going through hell right now, that there was still some kind of hope. I got a letter in the mail this past Saturday saying that (even with the tumor messing up most of my function) that I should be able to work in some capacity to the point my disability was denied. Truthfully, I have no idea if we will be homeless or not when the full version of Destiny comes out, but that isn't the point to all this. My point is simple really. Thank you Bungie for putting something out that even in an incomplete state, it could help me forget the daily migraines, medication injections, and general hell that my life has been for the last eight months. That is something truly impressive to experience. Thank you Bungie for continuing to put out great content, and even if I end up unable to play the full version of Destiny, I wish you the best on the launch. Your staff deserves a round of applause for the great game they have created. In regards to the comments, details for my condition are in a comment further down the page. Thank you all for the well wishing. Normally, I'd go comment by comment and say thank you, but it is looking like I'd have a ton of them to go through. Thanks guys, and with a little luck you'll get to shoot me in the face in Destiny sometime lol.
English
#Bungie #Offtopic

Posting in language:

 

Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

  • Hey Fallen! Any update on the treatment? Just wanted to let you know that people are thinking about you. Btw if you ever need any help with anything in Destiny, just let me know! Nexxus052 and Musket Squad are on call!

    Posting in language:

     

    Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

    3 Replies
    • Just giving this a quick bump for my update. I'd gotten a few PM's asking how I'm doing.

      Posting in language:

       

      Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

    • Stay strong get well soon

      Posting in language:

       

      Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

    • Get better soon!!

      Posting in language:

       

      Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

    • And then there is my aunt who has had a terrible brain tumor in her head for at least 7 years and acts like nothing is wrong even though she is in pain, hope you dont go through what she is going through every day, so get better.

      Posting in language:

       

      Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

      1 Reply
      • Hope you get better soon!

        Posting in language:

         

        Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

      • Hey I wish you all the best !!

        Posting in language:

         

        Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

      • Best wishes buddy. Hope you get well soon.

        Posting in language:

         

        Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

      • U on Xbox 1

        Posting in language:

         

        Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

        2 Replies
        • Thanks again for all the support guys. I'm crossing my fingers that I'll be 100% sometime this summer.

          Posting in language:

           

          Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

        • Best of luck to you sir!

          Posting in language:

           

          Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

        • [quote]today in the news, a man with a tumor who plays the popular game 'destiny' was awarded some in game swagger as support from the makers of the game, Bungie. The in game item is a weapon. Known as the [i]Last Nerf[/i], an exotic hand cannon that is purportedly going to be released in the upcoming dlc. Find out more on bungie.net. [/quote]

          Posting in language:

           

          Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

          2 Replies
          • What part of Ak are u From.... I was born and raise in P-town home of the Moose.... Hope u heal.... And feel better and get back to Normal... Whatever normal maybe.... Wishing u nothing but the Best

            Posting in language:

             

            Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

            2 Replies
            • Stay strong buddy hope all goes well.

              Posting in language:

               

              Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

            • Bless you bro. Stay strong like you have been.

              Posting in language:

               

              Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

            • Good luck

              Posting in language:

               

              Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

            • I can speak on relative terms, not in being sick or anything but, i know what its like to pick up a controller and forget daily problems easily. Its a good distraction. And Destiny provides the best one. I was born with epilepsy and the episodes i had as a kid affected my speech. And growing up poor most of my life, i didnt have any video games until i was like 14, and that was limited by my dad whod hide the power cord due to failing grades. Anyway, i was always the easy target in schools. Some days were worse than others, and after almost 10 years of being beaten down for not being able to speak "like everyone else" i decided, i dont need to talk. I got into breakdance amd grafitti, and after i got into college i got into bboy and gaming. Especially gaming now since my work schedule conflicts with my crew's practice schedule. College loan remains unpaid, friends dying left and right due to drunk -blam!-ing drivers who just dont give a shit, and for the longest time being unemployed just because of how i spoke, could anyone blame me for picking up a controller and pretending to be someone else who doesnt stutter? So, not as emotional as yours, but in terms of relativeness, i definitrlely understand where youre coming from.

              Posting in language:

               

              Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

            • UHUH UHHH WAGS FINGER BACK AND FORTH [spoiler] DONT THINK THIS WILL GET U FATE OF ALL FOOLS not everyone is that easy to fool[/spoiler]

              Posting in language:

               

              Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

              5 Replies
              • I'm sure that if your insurance dosent cover the trip to Seattle. Some guardians can help out. :)

                Posting in language:

                 

                Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

                2 Replies
                • Good luck man best wishes from all us guardians out there

                  Posting in language:

                   

                  Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

                • Biggest question ever ... fate of all fools, is it worth it?

                  Posting in language:

                   

                  Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

                  1 Reply
                  • Maybe they would let you get a tour of bungie in Seattle :)

                    Posting in language:

                     

                    Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

                    1 Reply
                    • Stay strong brother! at least you have a wife, and a gamer wife at that! God bless.

                      Posting in language:

                       

                      Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

                      1 Reply
                      • [quote]New years Eve 2014 Update: I'd completely forgotten about this thread, so thank you to the guys messaging and asking how I'm doing. The last couple months have been interesting but I'm getting better. There was a lot of trial and error finding out medication doses and whatnot, BUT they think the dosage we've worked out should be enough to kick the tumor's butt. At first I was on .25mg of cabergoline twice a week, now I'm up to .75mg BUT the blood markers are down to under 1/3 of what they were. Should have a new blood test in 2 weeks to find out for sure. The docs finally admitted they were out of their depth though, and recommended that I see a specialist. Kind of what happens when you live in a small(ish) town where the closest thing to an endo/neuro doc is an internist. Probably next week I'll be calling our insurance (thank god for insurance now lol) company and seeing if they will cover the trip to Seattle to see the specialist. I'll probably be there a week or so considering the'll want blood draws, etc. A lot of my symptoms are gone or nearly there. I can drive again without worrying about getting in a wreck from being dizzy or forgetting what I was doing. Short term memory is still fried but I'm thinking a lot more clearly at least. Honestly, I'm just amazed you guys even remembered about this thread. Thank you guys and if you are ever bored, feel free to shoot me a message on xbone. Same as my name here :) ---------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------- Edit: Moved from #Destiny to #Bungie for a better fit. First off, it isn't cancer thankfully. Downside is that I have a lifetime of medication that I can never go off of. This is where Bungie and the Destiny Beta comes in. Truthfully, I doubt out of all the forum posts and emails that they'd ever read this, but I'm telling my story anyhow. I had my final exam for disability due to my tumor on the 22nd. To say I was a mess before going into the psychological exams would be putting it lightly. I haven't slept more than 4 hours a night since I lost my job back in February from being unable to work. When I got out of my four hour appointment, I had an email. Not just any email, but one containing the beta download codes for Xbox. The moment I got home with my wife, Destiny was downloading, and we spent the entire beta test ignoring my problems for a few days. It was nice to feel normal, even for a few days. Nice to forget all the crap that is going on in my life and let it all fade away into having fun playing xbox with the wife again. Nice to remember what life was like 10 years ago playing Halo when we were dating and life was a lot simpler. It was nice to know that even though I'm going through hell right now, that there was still some kind of hope. I got a letter in the mail this past Saturday saying that (even with the tumor messing up most of my function) that I should be able to work in some capacity to the point my disability was denied. Truthfully, I have no idea if we will be homeless or not when the full version of Destiny comes out, but that isn't the point to all this. My point is simple really. Thank you Bungie for putting something out that even in an incomplete state, it could help me forget the daily migraines, medication injections, and general hell that my life has been for the last eight months. That is something truly impressive to experience. Thank you Bungie for continuing to put out great content, and even if I end up unable to play the full version of Destiny, I wish you the best on the launch. Your staff deserves a round of applause for the great game they have created. In regards to the comments, details for my condition are in a comment further down the page. Thank you all for the well wishing. Normally, I'd go comment by comment and say thank you, but it is looking like I'd have a ton of them to go through. Thanks guys, and with a little luck you'll get to shoot me in the face in Destiny sometime lol. Edit: So I've been messaged several times about donations and whatnot. For the record, getting money or help wasn't even the point of this post. Honestly, the community here at Bungie has surprised the hell out of me twice in one day. I never expected this much of a response, let alone all the offers of help or assistance I am getting. So thank you everyone. Personally, just the good thoughts from the forums alone are helping like crazy. I don't want this to turn into "Fallen003's fundraiser page" but thank you either way. Link will be provided on request. Thank you :) Edit: for those wondering about my condition, I'll be posting a (contact info deleted) copy of my disability denial on the gofundme page when I get home tonight. You don't have to donate, but I never even thought that I might look like a scammer either. Feel free to ask whatever about my condition btw. I don't mind.[/quote] Get well soon guardian

                        Posting in language:

                         

                        Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

                      • Hey hope everything is going ok with you!

                        Posting in language:

                         

                        Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

                        2 Replies
                        • I'm praying for you man. I hope it's getting better. You're post hit me hard, use reminding me that sometimes something so simple can have a huge impact. #bungie hook this guy up or help him out in someway. If any fan deserves it. It's him.

                          Posting in language:

                           

                          Play nice. Take a minute to review our Code of Conduct before submitting your post. Cancel Edit Create Fireteam Post

                          1 Reply
                          1 2 3 4 5 6 7
                          You are not allowed to view this content.
                          ;
                          preload icon
                          preload icon
                          preload icon