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Edited by Fallen003: 6/5/2016 11:25:29 PM
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A thank you to Bungie, from a guy with a brain tumor (Update 6/26/15) Good and bad news

June 5, 2016 update Holy crap guys, it's been a year since my last update? Man time has flown. So I'm popping in by request to give an update. It's been an interesting year to say the least. Good news first: My latest visit with the specialists was three weeks ago give or take. The tumor is stable and shrinking, down to ~5mm or so in size. Doc thinks 2-2.5 years more of medication and it'll be gone. Since it is stable, they are looking at other issues that are wrong with me. I should also (hopefully) have my disability approved by the end of the month. I am also 100% off insulin now. So my body is slowly healing. Bad news that isn't too horrible: Let's see... The missus and I separated last August. Thankfully it was an amicable thing. I tried to go back to work, but crashed and burned horribly, only being able to work 2-3 days a week isn't a good thing at a full time job. It was worth a shot though. I was diagnosed with AGHD, as my body apparently isn't making growth hormone. Like none. So I started shots for that on Friday night. Doc thinks that in a year or less, the shots should really start fixing a lot of my other issues with memory, focus, etc. It'll be nice to be able to explain stuff without losing my train of thought. I've spent about an hour typing this so far. The nerve damage doesn't look like nerve damage. I have a MRI on Monday to look at my C Spine, as the neuro guys think one of my many back injuries might have crushed some nerve fibers. Still, at least we know the nerves are functioning, just the pain signals aren't getting where they need to go. All in all though, that's not what I'd call "bad" news. I'm finally getting a lot of the answers I've needed for the last few years. It's only taking 3000 mile round trips to Seattle to get them (I'm in interior Alaska) but it's worth it. So the current med tally has gone down, but what is left is more specialized stuff. -Cabergoline 0.5mg twice a week -Testosterone Cypionate 80mg a week IM shot -Novotropin (HGH) 0.2ml shot daily -Metformin XR 500mg daily Thanks again for all the 'get wells' and wishes everyone. Honestly I'd forgotten about this until I got a message on xbox live the other day. Hope to catch you guys around and probably get shot in the face since I suck at PVP :D ------------------------------------------------------------------------------------------------------------------------------------------------------------------ Edit: Moved from #Destiny to #Bungie for a better fit. First off, it isn't cancer thankfully. Downside is that I have a lifetime of medication that I can never go off of. This is where Bungie and the Destiny Beta comes in. Truthfully, I doubt out of all the forum posts and emails that they'd ever read this, but I'm telling my story anyhow. I had my final exam for disability due to my tumor on the 22nd. To say I was a mess before going into the psychological exams would be putting it lightly. I haven't slept more than 4 hours a night since I lost my job back in February from being unable to work. When I got out of my four hour appointment, I had an email. Not just any email, but one containing the beta download codes for Xbox. The moment I got home with my wife, Destiny was downloading, and we spent the entire beta test ignoring my problems for a few days. It was nice to feel normal, even for a few days. Nice to forget all the crap that is going on in my life and let it all fade away into having fun playing xbox with the wife again. Nice to remember what life was like 10 years ago playing Halo when we were dating and life was a lot simpler. It was nice to know that even though I'm going through hell right now, that there was still some kind of hope. I got a letter in the mail this past Saturday saying that (even with the tumor messing up most of my function) that I should be able to work in some capacity to the point my disability was denied. Truthfully, I have no idea if we will be homeless or not when the full version of Destiny comes out, but that isn't the point to all this. My point is simple really. Thank you Bungie for putting something out that even in an incomplete state, it could help me forget the daily migraines, medication injections, and general hell that my life has been for the last eight months. That is something truly impressive to experience. Thank you Bungie for continuing to put out great content, and even if I end up unable to play the full version of Destiny, I wish you the best on the launch. Your staff deserves a round of applause for the great game they have created. In regards to the comments, details for my condition are in a comment further down the page. Thank you all for the well wishing. Normally, I'd go comment by comment and say thank you, but it is looking like I'd have a ton of them to go through. Thanks guys, and with a little luck you'll get to shoot me in the face in Destiny sometime lol.
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  • I wish you all the best man! No one deserves to go through what you are going through. It's cook to hear how Destiny was there to take your mind off of things for a while. Who knows whether or not Bungie will read this, but it makes me and I'm sure others feel better about playing video games. Your story kind of reminded me why I play video games. Just to get away from the stresses of every day life for a while. One more thing, you could always send Bungie a good old fashioned letter in the mail if you really want to say thank you. They'd be more likely to see it and I'm sure they would really like to hear a story like this. Best of luck in the future.

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    • We are all wishing you the best and hope to see you in Destiny on the 9th! Shoot out your name so we can make sure we all get at least one turning "shooting you in the face" :D Wishing you the best of luck dude and really hope we all get to see you very soon

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    • I'll be playing on X1 and PS4 so if you're on either I'd love to have another friend in my fireteam to slaughter our enemies together!

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      • Sorry that you have to go through all of that. I hope things turn around quick for you and you're taking your guardian out to fight come sept. 9th.

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      • Wish you the Best of Luck. Everyone here will always stand by a fellow guardian.

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      • My thoughts and prayers are with you. Wishing you all the best, man. Hopefully things go well for you soon.

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      • That is the most beautiful thing I have ever read

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        • Good luck. Remember, there's always hope.

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        • For me games are the best distraction from all the real world s#1t we have to mow through everyday. They definitely helped me hold on to my sanity during my time in and out hospitals and the Ronald McDonald House. It's awesome you have someone to share your passion with too. Finding other people to play PSP games with over ad hoc networks was really cool for me. I wish all the best to you. Hang in there, we'll be praying for you.

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        • Hey man, try again for your disability. The percentage of people who are denied on their first attempt is astounding. My ex-husband's father was denied for disability after a terrible car wreck that left him in a nursing home for 6 months at the age of 50. He was denied again after a bout with pneumonia left him missing more than half of one of his lungs. He finally got approved after he had a coughing fit that cause him to pass out, fall from the open door of his car, and break his neck. I mean, come on! Give it another go. And we'll see you star side :)

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        • I know how you feel, I just spent the day filing for state disability due to my own medical conditions (both mental and physical) that have now prevented me from working and living a normal life without pain. After my military service I started using games in the same way you mentioned above, a distraction. Many of us in the gaming community know and understand how daunting life can be (kids, marriage, medical conditions, etc.) but that is what unites us as a global community. Take care, me and the mrs feel for ya (even if she hates gaming, she understands why I do it).

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        • This is why I love video games, stories like yours that inspire people to do more... It's not much but I would like to give you $20. Maybe setup a fund or something for you that people can donate to etc etc

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          • Add me gt is my name on here u are awsome and the ppl who want to help him are awsome too. this is y being a gamer is better than being a mainstream snap chat fake.

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          • You're a brave guy, much more than I am. I wish there was a way for you to get better if it was possible. =)

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          • I almost lost my mom to a form of cancer, they removed it, but nether the less I pray that they develop a way to combat your tumor. God speed to a quick recovery/removal

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            • Good luck bro, I really hope you recover. =)

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            • I am sorry to hear of your struggles and would like to send my best wishes to you and your wife. I have things going on in my life, although not as significant as your issues, that I struggle with on a day to day basis and I find that video games can be a great release and help to forget your worries and problems, even if only for a short time. I hope you get better with time Regards, EvilWaterman

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            • Shit dude. Right in the feels.

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            • Best of luck to you, Fallen003. Hope I see you in game some time soon :)

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            • All I can say is to be strong and good luck. Sometimes life can just push you down. Luckily you have a wife and family that love you and will be by your side now. My best wishes to you, your wife and your family in this hard time.

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            • Damn i thought this was a "i hate bungie" post..... Shut me up why dont you lol. Dont worry man.... Ill see you in the tower..you play XB1?

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            • You know i was going to just ignore commenting because i know that all you wanted was to thank bungie and let others know your story and your point on it, but i really cant help but to at least thank you for telling your story to us man, seriously. It takes a real man with BALLS of still to do this you know, to let people know about your personal stuff. Well done and keep it up, just remember that life is beautiful if you look at it that way, dont let that tumor ruin your happiness, remember that you have a wife that must definitely love you more than anything in the world and that my friends counts more than any disease, be a happy person for the longest as you can because you never know what will happen next. This is Golden Clutchyy showing you some love, i hope really hard that you get well. AND THIS MESSAGE GOES TO EVERYONE IN THIS WORLD THAT IS GOING THROUGH ANY BAD SITUATION.... I LOVE YOU ALL......we are all human.

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            • If this is a troll, you win. That post should be seen across the world!

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              • Sorry to hear about that, bad luck. However I wish you all the best for the near (and far) future and hope you kick the living shit out of said tumor. Take it easy and stay classy!

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              • I'll be praying for you man! It's gotta be tough, but I hope everything works out for you. If you're on XB1 at all add me! My GT is Orannis17. I'll actually play, too and not just say I will. That goes for anyone reading this thread who has compassion for this guy. Lets make him the first guy to get through the Vault of Glass!

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              • I was physically in the hands of the Veterans Assistance administration after bladder cancer surgery, placed in a local nursing home by the V.A. for recovery for six months, when I received the notice that my disability was not approved. That is a condition that will never go away and is so debilitating that any kind of work is impossible. The reason given was that insufficient medical evidence of disability was provided. It took the big foot of the V.A. to step on both the Social Security Administration and the state of Washington to get anything accomplished. It appears to be normal procedure for disability to be denied after application for all except those who feign disability while living in homeless shelters. Those are the only ones I have witnessed being accepted into the program without any hassle or delay. "Law of Games" is offering a great blessing to you. It is actually exactly what must be done in order to win your claim, and that is part of your Destiny.

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